الفهرس 
Purpose of the StudyOnly 14 pages are availabe for public view
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Abstract
Children with ostomies are a big challenge to their caregiver. It
enables children to live a normal life Adequate management of the stoma
is necessary to prevent complications. Mother’s role in managing the
stoma is crucial in improving the child’s condition. Ostomy children has
many educational needs about nature of stoma, different types of stoma
and its care, clothing, travelling and lifestyle in general, The child’s
adjustment is dependent on family acceptance and support.
Purpose of the Study was to:
To assess the effect of partnership based program with primary
caregivers of children on stoma care.
Research Design:
A quasi-experimental design was utilized (study / control group).
Research Setting:
This study was conducted in the pediatric surgical department and
outpatient clinic at both Menoufia University Hospital and Benha
Specialized Pediatric Hospital.
Sampling:
A purposive sample of 60 children and their primary caregiver (58
mothers and 2 fathers) were obtained from the above mentioned
settings.
A simple random sample was used to assign them equally into study
and control group.
1- Study group involved 30 children and their primary care givers (20
children were selected from Benha Specialized Pediatric hospital
and 10 children from Menoufia University Hospital) they received partnership based program; 3 session for three consecutive days
along with routine hospital care.
2- Control group: involved 30 children and their primary care givers
(20 children were selected from Benha Specialized Pediatric
hospital and 10 children from Menoufia University Hospital) they
received only routine hospital care.
Instruments of the Study:-
Five tools were utilized for data collection:
Instrument one: Social characteristics Structured Questionnaire:
It is Structured Interview Questionnaire. It was developed by the
researcher. It was divided into three parts.
Part one (Characteristic of children) It included questions about
age, sex and birth order. Part two (Characteristics of primary caregivers)
It included questions about age, education, occupation, residency and
telephone number. Part three (Medical history of the child) It included
question about diagnosis, previous hospitalization, causes of hospital
admission, site and type of stoma either permanent or temporary.
Instrument two: Structured Interviewing Questionnaire: -
To assess knowledge of primary caregivers regarding the stoma; it
was divided into four parts. Part one: Knowledge about stoma. Part two:
knowledge about stoma care. Part three: knowledge about proper
nutrition. Part four: knowledge about follow-up and home care.
Instrument three: Stoma Care Checklist:
To assess the primary caregiver’s practices related to stoma care. It
included two parts. Part one include three phases of stoma care. Phase
one: Preparatory phase. Phase two: Performance phase (Applying thepouch). Phase three: Follow-up phase. Part two: - Reusing the old
pouch.
Instrument four: Stoma Assessment Sheet:
It is an observational checklist to assess stoma general condition. It
included two parts. Part one: It included signs of infection such as:
hotness, tenderness. Part two: Bacteriological tests: it includes lab studies
for bacteriological investigation.
Instrument five: Quality of Partnership Likert Scale:
It was adopted from Michael Sheppard (2001) to assess the quality
of partnership; it was divided into 4 parts. Part one: Participation in
decision making. Part two: Involvement in decisions implementation.
Part three: Consultation. Part four: Recipient of information.
The main results of the study showed that:
1- Approximately all caregivers had high level of knowledge post
intervention in the study group compared to control group (96.7% vs.
0.0% respectively).
2- The total mean score of caregiver’s knowledge was high in the study
group compared to control group on pre, post and follow up phases
(14.63 ±5.7, 61.30 ±5.2 & 60.93 ±6.5 Vs. 13.33 ±4.9, 14.63
±5.7&18.40 ±8.2 respectively).
3- The caregivers had higher total mean score of performance post
intervention in the study group compared to control group (28.33
±1.01vs. 4.06 ±2.5 respectively).
4- There were positive highly statistical significance correlation
between total caregiver’s knowledge and practices regarding stoma
care.More than half of children in the study group had no signs of
infection at the follow- up test compared to control group (70.0 % vs.
6.7% respectively).
6- The majority of caregivers in the study group had high level of
partnership quality post and follow-up intervention compared to pre
intervention (96.7% and 100.0 % vs. 6.7%, respectively).
7- The total mean score of partnership quality post intervention in the
study group were 22.50 ±3.1compared to 4.67 ± 4.6 in pre
intervention.
8- The total mean score of caregivers satisfaction on post intervention
in the study group were 7.60 ±1.04 compared to 1.33 ±1.52 in pre
intervention.
9- There were positive correlations between total caregivers knowledge
and partnership quality at 1 % level of statistical significance.
The Study concluded that:
Primary caregivers who received partnership based program had
higher level of knowledge and demonstrated higher level of stoma care
than primary caregivers who received only routine hospital care. Also,
their children had better clinical condition (e.g. less redness, hotness, pain
during touch and infection manifestations) of their stoma than those who
received only routine hospital care.
Based on the results of the study it was recommended that:
1. All adopted principals of partnership in the study should be taken in
consideration when caring for children having stoma and their
families’ to improve their outcome.Partnership in-service education programs should encourage
nurses to develop personal communication and relationship
with the caregivers
3. The hospitals should provide mothers with needed supplies required to
demonstrate proper stoma care
4. Policies of the pediatric surgical departments should optimize
the concept of parental involvement in stoma care to improve
children health status .