الفهرس 
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Abstract
The incidence of pediatric rheumatic diseases is increasing worldwide, particularly in young children. With the chronic nature of the diseases the children find hardship in everyday life.
Health related quality of life and continuous assessment of functional disabilities in those children makes the disease more understandable and reflects the burden of the disease on those children as well as their parents. Also, it’s always better to express the disease in numbers than words.
Quality of life is a multidimensional, dynamic and personal construct, encompasses physical, psychological and social domains in the context of the individual’s goals and expectations.
With the destructive nature of most of the rheumatologic diseases close monitoring of the child’s quality of life is mandatory. An important reason for measuring HRQOL is to find ways to improve the HRQOL of the children suffering from rheumatic diseases. Also, measuring HRQL enables us to assess the efficacy of the drugs in a more meaningful way.
The aim or our study is to assess the functional disability and HRQL in a group of children with different rheumatic diseases using different assessment tools. Also, our aim was to assess the relationship between each functional disability and HRQL.
Our study is a cross-sectional descriptive study. It was conducted upon 51 children with different rheumatologic diseases who were selected from the attendants of the Pediatric Department and the Rheumatology and Rehabilitation outpatient clinic at Minia university hospital during the period from 2016 to 2017. Our patients were classified into 3 groups; group I: included 27 JIA patients. group II: 15 pSLE patients. group III: 9 patients with other rheumatologic diseases including 3 FMF patients, 3 Juvenile Dermatomyosities patients, 3 pediatric Systemic Scleroderma patients.
The studied groups were subjected to full history taking, clinical examination, CHAQ to assess functional disability, PedsQL to assess HRQL and a measure to assess to the activity index according to the nature of each disease; JIA : DAS28, SLE: SLEDAI2, FMF: AIDI, Pediatric systemic scleroderma : ScleroID, Juvenile Dermatomyositis: PRINTO core set measures.
Due to the small number of the third group we couldn’t detect a statistically significant data about those patients. So our study focused on JIA patients and pSLE patients.