الفهرس 
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Abstract
Juvenile diabetes is an autoimmune disease that destroys the insulin-producing β-cells in the islets of the pancreas, resulting in hyperglycemia and associated complications. It is one of the most common chronic diseases from childhood, requiring continuous or multiple daily insulin injections and blood glucose monitoring at substantial personal and economic cost. Genetic susceptibility accounting for at least half the lifetime risk, together with environmental conditions, leads to the development of juvenile diabetes (Attili, Anna Rita, 2011).
Diabetes mellitus is one of the most common chronic non curable diseases affect children and adolescents. So, it requires sustained and coordinated educational support for those young patients to live peacefully and happily with it. Implementing educational programs for those children and adolescents is crucial for maintaining their life and improving their quality of life (Mahmoud, 2013).
Aim of the Study:
This study aims to assess Quality of life among School children suffering from juvenile diabetes through.
1- Assess the quality of life of the children suffering from juvenile diabetes using Quality of life scale.
2- Assess factors affecting the quality of life among children suffering from juvenile diabetes.
Research question:
1- What is the quality of life level among children suffering from juvenile diabetes?
2- What are the factors affecting the quality of life of children suffering from Juvenile Diabetes?
Subject and methods:
1- Technical Design:
Design:
A descriptive analytical research design used in this study.
Setting:
The study was conducted at outpatient clinic for diabetes in Ain shams University hospital.
Subject:
The study was including all juvenile diabetes students according to the following criteria.
- Age ranging from 6-12 years.
- Confirmed diagnosis since 6 months or more.
Sampling technique:
Type: The study was including a purposive sample.
Size: All children who represent. 10 % of total children attended to outpatient clinic for diabetes in Ain shams University hospital in last year which attendance was 1000 children according to the sample criteria (Hospital statistical office 2013).
Tool for Data Collection:
Two tools were used for data collection. The tool for data collection was designed by the researcher after reviewing the related recent literature it will be involves:-
1STTool: Interviewing questionnaire which include the following parts:-
Part 1: (A) to assess of socio demographic data about children’s. It contains closed question about:-Name, Age, gender, Child order, home place, family number, number of rooms, etc………. (Appendix I)
(B) To assess health history of children’s it contains closed question………. (Appendix I)
Part II: to assess knowledge of children’s about quality of life: it contains three questions QN (18-20) about (concept of quality of life, factors affecting it, and how to improve quality of life of children. (Appendix I).
Part III: Diabetes specific quality of life scale (DSQOLS) (Appendix II).
Part IV: to assess knowledge of children’s about diseases: it including 12 questions such as definition, signs and symptoms, reasons, information source, reason of hyper and hypoglycemia, how can disease be controlled, precautions during insulin treatment, diet (how many meals, type, and meals time), and complications of diabetes. (Appendix III)
2nd Tool: Physical examination sheet: include: weight, height, digestive System (loss of appetite, nausea, vomiting, loss of weight, dry Mouth, diarrhea, constipation, colic, dyspepsia), urinary tract system (change of urine color, dysuria and acetone smell in urine), etc……….. (Appendix IV)
The findings present study could be summarized as the following:
• The finding study showed that 33.0% of diabetic children were in age group of 6:<, and 34.0% were in age group 10:<12 years, with a mean age of them were10.0 ± 2.5. The table shows also 50.0% of them were female. Concerning child ranking 32.0% of studied children were the second and first child in the family, and 22.0% were third. As regard home place 53.0%were living in urban. About crowding index 60.0% of them were moderate crowded.
• Concerning mother’s education 44.0% middle education, 16.0% illiterate, 80.0% of their mothers were house wife. Regarding fathers education 38.0% of fathers had middle education, 10.0% of their fathers were unemployed. The table also show that 92.0% of the family had <1000 pound / month.
• Accordance to factors affecting quality of life of children suffering from juvenile diabetes medical, economical, psychological, and social factors were the main factors affective quality of life.
• It was reported from this study that the 14.0% of children suffering from juvenile diabetes had good in all dimension of quality of life and 45.0% of them had average in quality of life.
• Regarding total knowledge about diabetes more than three quarter of studied sample had average knowledge about diabetes (88.0%).
• It was found that more than third of children suffering from juvenile diabetes had pillared vision, headache, and numbness, and more than two third of those children had uncontrolled blood glucose level (76.0%) and more than half of them had average hemoglobin level (54.0%).
• There was represents statistically significant relation between children socio-demographic characteristics and total quality of life while there is non-significant relation between mother’s occupation and total quality of life.
• This table shows that is an inverse relationship between the quality of life and knowledge about diabetes in children suffering from juvenile diabetes where statistically significant relationship between total quality of life in children and knowledge about diabetes in children suffering from juvenile diabetes.
The following recommendations are inferred from the study:
• Continuous assessment for diabetic children’s knowledge about diabetes mellitus and its control, change misconception, provide them with updated knowledge and develop their abilities for demonstration of therapeutic regimen to achieve high quality of life.
• Conducting educational programs for medical, nursing staff, socialists, pharmacist, parents, school teachers, school doctor and school health nurse about various aspects of juvenile diabetes in children about care, and importance of enhancing their QOL.
• Motivate diabetic children and their families to participate actively in diabetes management and integrate the components of diabetic management into their lifestyle.
• Integrate the concept of quality of life in management plan of children suffering from juvenile diabetes.